Data Privacy Statement

May 2018

The International Headache Society (IHS), 4th Floor, Mitre House, 44-46 Fleet Street,
London, EC4Y 1BN, UK, is an international membership organisation for those with a
professional commitment to helping people affected by headache. As a charity, the
purpose of IHS is to advance headache science, education, and management, and
promote headache awareness worldwide.

It is IHS’ utmost concern to constantly improve its services in order to best meet the
needs of its members. To this end, IHS may collect and store certain information,
including personal data you have provided. IHS takes the privacy of your personal data
very seriously in all of its business processes. This Data Privacy Statement is meant to
help you understand how data are collected, processed and stored to meet legal
requirements and IHS’ data privacy standards.

It will be very difficult for IHS to provide you membership services if you refuse to allow
IHS to process your data. For this reason, by providing personal data to IHS, you agree
to be legally bound by and explicitly consent to this Data Privacy Statement, and
subsequent revisions. If you do not agree to this Data Privacy Statement or cannot form
a legally binding contract, IHS will not be able to process your personal data.

1. Scope of this Data Privacy Statement

This Data Privacy Statement applies to all services offered by IHS and its subsidiary
company, IHS Trading Company Ltd, which organises the IHS International Headache
Congress (IHC).

This Data Privacy Statement does not apply to services offered by other companies or
individuals and does not cover the information practices of other companies and
organisations who advertise IHS services or any third party operating any website to
which the IHS website or other digital asset may contain a link.

2. Data collected and method of collection

IHS collects general and personal data concerning you when you

  • apply for IHS membership
  • register for an IHC
  • attend an IHS educational event
  • submit an application for an IHS grant or award.

The personal data held may contain, but is not limited to:

  • name
  • gender
  • date of birth
  • address
  • telephone and fax numbers
  • email addresses
  • organisation or company of employment and/or job title
  • field of activity and/or interest.

3. Purpose of data collection

IHS uses the data collected to

  • provide you with the membership benefits
  • share your data with organisations for membership services
  • include your details in the IHS website Members Directory
  • provide you with news and information about events and conferences
  • provide you with information about grant opportunities
  • produce surveys for you to participate in
  • assess whether you’re eligible or suitable for services we provide, e.g. assessing
    your grant application.

As a member, it is necessary for IHS to share this information with various companies
which provide IHS membership services:

  • the publisher of Cephalalgia and Cephalalgia Reports
  • the provider of the Cephalalgia app
  • the IHC congress organiser
  • the IHS website provider
  • IHS contracted staff
  • representatives and staff of IHS Affiliate Member Societies
  • mailing houses (to send out mailshots and membership information/news).

IHS will not share membership data with any other organisation and will not collect more
data than is necessary to fulfil such purposes.

4. Duration of storage

Personal data will be kept by IHS during the period of membership and for up to seven
years following cessation of membership.
You may request that IHS delete your data by sending an email to

5. Your rights

In accordance with applicable data protection laws and regulations, you have a right to
request access to, rectification of your data, or restriction of processing, and to object to
said processing. Members can access the personal data stored through the IHS website
(Members Directory, My membership details).

If you have any questions or issues about our data processing please contact info@i-hs.

6. Changes

This Data Privacy Statement may be revised and updated by IHS from time to time to
comply with statutory data protection and privacy laws. IHS will post any statement
changes on the IHS website.

7. Contact

If you need further assistance please contact